FYI if you are in the medical profession, I recommend that you don't say this to a parent:
Huh. I've never seen anything like that...
As you look perplexed, interested, and confused.
I just learned about Amniotic Banding Syndrome in a class I took years ago. I've never actually seen it.
It turns out that in addition to an extremely tight amniotic band on her leg, Julia Mei also has a severe club foot.
The foot cannot be treated until we address the band.
Her band will require 2 surgical releases.
The first procedure will release the front half, and the second will release the back half.
About a month after the 2nd surgery, we will start the casting process. Julia Mei will get new thigh high casts weekly for about 6 weeks.
After that we will schedule a pretty complicated surgery called a posterior and anterior release. This is not all that common since most babies born in America will have casting done shortly after birth.
She will have a brace at night for years...and multiple surgeries as we go along.
Bones will have to be moved around.
Even so, there is no guarantee that any of it will work enough for her foot to be functional, and she still may face an amputation.
However this goes down, she is worth it.