Friday, November 21, 2014

I *heart* Someone Rare


Rare disease:  
defined as a a disorder or disease that impacts fewer than 200,000 Americans at any given time (figure from Rare Disease Day) 

Rare Disease Day is just over 3 months away from today~February 28, 2015.

I will be wearing jeans this year to bring awareness to the importance of research and awareness about rare diseases.  

After meeting with our family geneticist, I discovered that someone that I love and cherish is quite rare.  So rare, in fact, that I cannot find any information online about his specific chromosome duplication. 

He is ONE of a kind.



He is HAPPY.

He is THRIVING.

He is RUNNING.

He is ENERGETIC.

He is LOVING.

He is GENTLE.

He brings JOY to all.

His LAUGH is contagious.

He is AMAZING.

Please consider wearing jeans on 2/28/15 to honor my son, and other unique little ones.

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Friday, November 7, 2014

Just because we like pumpkins and candy

We have been busy enjoying all of the Fall Firsts!  This is such a wonderful time of the year and there are so many fun activities to choose from.  October weather this year was perfect to set up events every weekend.

     
We found a local free fall festival that included a bounce house, free pumpkins and painting, free food, face painting, tattoos, etc. 




 We went out to a local park to play and found an excess amount of leaves.  Jumping into a big pile of leaves~making angels in the leaves~covering up big brother with leaves~it was a perfect Friday afternoon!



We got the costumes out a few weeks early this year, and Skully here enjoyed some yummy treats at a little party.


Last year we went to our first Trunk or Treat event.  It was great, so we tried out a local one during the day. It was HUGE!  It was a bit overwhelming for the 2 little walkers as they got trampled by bigger kids.  The little princess needed some space but the dinosaur and the unicorn on my back have fully mastered the art of the Trunk or Treat.  



We usually go on an Unhaunted Hayride but I don't think they were offering it this year.  We ended up going on a trolley ride to a pumpkin patch.  It was wonderful! 








And finally, the littles enjoyed their first Halloween, and the bigs are still at an age that they enjoyed it as well.

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